This March marks the 18th anniversary of the beginning of my writing the column “Life With Multiple Sclerosis.” I began writing after a difficult first few years of living with my multiple sclerosis (MS) diagnosis. Much has changed over that period — including how I write, what I write about, and how those writings are delivered to you, my readers.
I’m happy to say that my newest book has now been published by Coffeetown Press and will be available to international readers through Ingram.
It’s called Living Well With Multiple Sclerosis, and I’d be remiss were I not to call out the significant efforts of a woman I call my “MS sister,” Emma Rogan, with whom I worked for nearly two years to get the writing into its current format.
While not written in a linear manner, we have arranged it so. It’s been called “one part primer, one part handbook, one part pocket translator, and 100 percent an essential field guide for navigating the challenges of living with chronic illness.” Humbling, indeed.
Even more humbling was that Tim Coetzee, PhD, chief advocacy, services, and science officer for the National MS Society, wrote a lovely foreword to the book.
An old friend once said, and it’s stuck with me since, that “self-praise goes but little ways.” So I’ll let others speak to that. It must be said that I am gobsmacked by the international voices who have offered up reviews of the new book.
What the Experts Are Saying About My Book
“Delightful, funny, insightful, poignant, and compelling. Living Well With Multiple Sclerosis should be mandatory reading for every patient dealing with any chronic health condition and for the doctors treating them.”
— Michelle Toshima, PhD, Multiple Sclerosis Center at Swedish Neuroscience Institute
“Trevis is bold, insightful, and sensitive as he explores the taboo and often neglected subjects that impact the survival of people living with MS.”
— Barbara (Bobbie) Severson, ARNP-C
“An open, honest, and real account of life with MS. It’s confronting, uplifting, challenging, emotional and all things in between. A great read.”
— Trishna Bharadia, MS patient advocate, MS Society UK
“Humorous, self-deprecating, pragmatic, and enlightened, Trevis provides a must-read account of playing the hand that MS has dealt him the best he can.”
— Ava Battles, chief executive officer, Multiple Sclerosis Society of Ireland
“Trevis paints a picture that gives readers an inside look at what it’s like to live and thrive with MS.”
— Pamela Valentine, PhD, president and chief executive officer, MS Society of Canada
“It’s like spending time with your new warm, wise, and funny best friend. You’ll feel as though you are hanging out while learning what it means to live and love with multiple sclerosis.”
— Sara Loud, chief executive officer, Accelerated Cure Project
“A vivid diary of a personal journey through multiple sclerosis. While every journey is different, Trevis has managed to bring us into the shared experience of people with chronic illness.”
— Paola Zaratan, PhD, director of scientific research, Italian Multiple Sclerosis Society
“You don’t have to have MS to appreciate Trevis Gleason’s writings. While he’s never less than honest about the hard parts, he also manages to keep it light and find the humor in what he’s going through.”
— Ingrid Strauch, editor, Everyday Health
“Trevis touches on the core themes that are at the heart of communities of people living with chronic conditions: solidarity, agency, knowledge and education, discrimination and stigma.”
— Nicola Bedlington, former secretary general, European Patients’ Forum
“The description of an individual life path that can give people living with chronic illness both courage and hope.”
— Herbert Temmes, president, European Multiple Sclerosis Platform
“This book gives context and life to the words, to the questions, and to the fears that so many of us living with a chronic illness are too afraid to speak of or too embarrassed to ask.”
— Ciara O’Meara, RGN
“This is the book that newly-diagnosed as well as long-haul multiple sclerosis patients and their families should have on their bookshelves.”
— Meredith O’Brien, author, Uncomfortably Numb: A Memoir
I’m Hoping It Can Help You
I am almost embarrassed by such advance praise from an internationally distinguished list of authorities saying such nice things about this book. I hope that you find it helpful to yourselves or your family and friends. I also thank all of you for so many years of your comments and support for Life With Multiple Sclerosis.
Wishing you and your family the best of health.
My new book, Living Well With Multiple Sclerosis, is now available. Follow me on the Life With MS Facebook page, and read more on Life With Multiple Sclerosis.