Psoriatic Arthritis Support: Where to Find It
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Psoriatic arthritis is an inflammatory autoimmune disease that frequently occurs in people with psoriasis, a skin condition that leads to itchy, scaly lesions, often on the knees, elbows, torso, and scalp. Psoriatic arthritis commonly affects the joints in the hands and feet and results in symptoms such as joint pain and swelling, as well as fatigue and nail changes.
But it’s not your grandfather’s arthritis. Psoriatic arthritis typically crops up in people ages 30 to 50. It can feel like an invisible disease, as not everyone can see the joint issues you’re dealing with. As a result, there’s a lot that’s misunderstood about the condition.
“For any chronic disease, including psoriatic arthritis or any other type of inflammatory arthritis, it’s essential to treat your emotional and mental health as seriously as your physical health,” says David Kung, MD, a board-certified rheumatologist at Austin Regional Clinic in Texas. “When mental health is unbalanced, it can result in increased pain and fatigue, impair work and personal relationships, and limit other activities of daily living. It can also impair your ability to get regular exercise, consume healthy meals, or manage your treatment plan effectively.”
Managing a chronic condition can also be a major source of stress, which can then make your psoriatic arthritis worse, adds Dr. Kung. The unpredictability of flare-ups can be a cause of stress and anxiety, making work and life planning more difficult. Meanwhile, the psoriasis-related skin lesions that often accompany psoriatic arthritis can be a visible source of embarrassment and stress, he says.
A strong support system can make all the difference in helping you manage your mental health and reduce your stress and anxiety. Fortunately, many support solutions and resources are available. Here are a few to consider.
1. Be Open With Friends and Family
Psoriatic arthritis can be less noticeable on the outside, which can make it especially difficult for others to understand the challenges you’re going through. That’s why it’s important to be open with your loved ones about your condition and to explain your symptoms and why it may be difficult for you to perform tasks. Don’t be afraid to share with those you care about and trust; chances are, they’ll not only be empathetic, but also want to step in and help where they can.
2. Seek Out Psoriatic Arthritis Support Groups
Life with a chronic condition can make you feel isolated. Connecting with other people who are going through similar experiences can be helpful, notes Kung. You may be able to find communities through organizations such as the National Psoriasis Foundation, the Arthritis Foundation and CreakyJoints. You can also search on social media, because a Facebook community or group can be a great source to compare notes with others about this chronic disease.
RELATED: 14 Things You Understand Only if You Have Psoriatic Arthritis
3. Consider Joining a Volunteer or Advocacy Group
It can feel rewarding and fulfilling to give back to the psoriasis and psoriatic arthritis community. The National Psoriasis Foundation offers volunteer opportunities where you can serve as a mentor and share with others what you’ve learned about the condition. Or you can serve as an advocacy volunteer to educate others about the disease and even help influence government policy on relevant matters. You can also sign up for fundraising events for the organization or volunteer to share information on social media.
4. Research Professional Organizations
Organizations such as the National Psoriasis Foundation and the Arthritis Foundation can also help you stay in the know about upcoming events and conferences, which can serve as an opportunity to meet others living with psoriatic arthritis. You may be able to attend events virtually or watch recordings of meetings. You’ll learn about the latest developments, and you might feel more connected to other people living with psoriatic arthritis.
5. Don’t Rule Out Therapy or Counseling
It’s always wise to prioritize your mental health, even more so if you find your condition is causing a lot of anguish, stress, and low points.
“Managing mental health is usually best through multiple approaches, and generally, there’s not a one-size-fits-all approach,” Kung says. “Some find help through friends or family, while others may need counseling or medications.” Be sure to open up to your healthcare provider about your mental and emotional health. They may be able to provide a referral to a therapist or counselor who can help.
RELATED: Managing Psoriatic Arthritis: Should You See a Therapist?
6. Get Some Exercise — and Make It a Social Activity
Exercise is important for everyone, but especially for people who have psoriatic arthritis, as staying active can improve both the mental and physical aspects of managing the condition, says Kung.
“Exercising outdoors is even better, as the sunlight can likely improve psoriasis a little and help boost vitamin D,” he adds.
Take it a step further by meeting with a friend or family member for regular walks or jogs. The social time will not only improve your mood, but also provide an opportunity to fill your loved ones in on how you’re doing.
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